I am seriously concerned with this take over of BFRB’s in our community and TLC (Trichotillomania Learning Centre) rebranding.
I really disapprove of how Trichotillomania is losing it’s individuality by being grouped with other conditions such as nose picking, chin chewing, scab picking, skin picking and how it’s no longer being referred to by it’s name in conversation or awareness, but as it’s group name.
BFRB is a really fiddly term to remember and type, I’m not sure where it’s come from but I don’t think it’s memorable or suitable . I struggle to remember what it is and constantly fuss over which order to type my letters (those specific letters are so similar when side by side too!).
I’m already experiencing shared confusion from my followers about BFRB’s. What it stands for. What they are? Is BFRB a disorder on it’s own? If we have a BFRB do we have all that come under it? Do I now call my disorder BFRB and forget the name for my individual disorder?
Furthermore, is this a term that will die out? By this I mean, that I’m concerned that the terminology surrounding our disorders keep changing every few years - could this potentially change in two years time? We could build and alter our community to accommodate this name/group name and then it could suddenly be incorrect in 2017.
Do we have to take on board the BFRB term in the first place? Friends are saying not to worry, but as the big companies and DSM are altering, that means we all need to follow suit.
Please understand that yes, I want awareness for all, but not at the cost of losing awareness and diminishing my own disorder. If it’s now only to be referred to as a group term “BFRB” it could be lost amongst a group of things.
For example: Anorexia and Bulimia are put under the same umbrella ‘Eating Disorders’ - but they are not the same disorder. It causes confusion when someone says they have an Eating Disorder because there is more than one. Which one do you have, be more specific?
As someone who does so much talking on behalf of this disorder, I’m now under pressure to take on board all these changes and educate with the new terminology/rules and I do not feel knowledgable of all these disorders to the extent required or even comfortable to do so right now.
Yes all disorders deserve awareness but grouping them together isn’t necessarily the way to go. I feel we’re pushing so well with awareness and all this BFRB stuff is just going to cloud the waters and cause more confusion. Trichotillomania is complicated enough without having to add the worries and explanations of a handful of other disorders alongside.
*BFRBD’s stands for Body Focused Repetitive Behaviour Disorders.